
Many of my patients, however, are not this lucky. This morning, after I had just pronounced the death of one female patient with meningitis, I was saddened to learn another patient of mine with liver cirrhosis had also just died. Several days ago when he was admitted, I diagnosed with him hepatorenal syndrome and end-stage liver disease from chronic alcohol use and Hepatitis B. But the hospital had none of the three medications used to treat this syndrome, nor the option for surgical transplantation. I knew he was going to die, but it did not make his passing any more palatable or just. I was angry. All along I knew exactly what needed to be done for him but I was powerless to do any of it. The satisfaction of my chest tube earlier that week now seemed like a distant memory. I could feel myself pulling away again, and part of me wondered why I even bothered to try for patients like him in a place like this. Today was a bad day.
The answer to my confusion was in a book I was reading a few hours ago (on my flight to Kasane) by Abraham Verghese, titled "Cutting for Stone." In it the Matron of the hospital says to one of her benefactors, "We aren't even fighting disease. It's poverty. Money for food, medicines…that helps. When we cannot cure or save a life, our patients can at least feel cared for. It should be a basic human right." For the past several weeks I have become increasingly frustrated by the striking (and disturbing) differences in patient care between this hospital and those I am accustomed to practicing in at home. While these differences are important and should never be overlooked, I can not let my frustration belittle and overshadow my most important responsibility as a physician, a responsibility that has no borders or boundaries or asterisks. For my remaining time here, I intend to shift the focus of my care from treatment to doctoring. In the words of Paul Farmer, I am "challenging my belief and desire to always want to think big as a reason for why I am not happy taking care of patients clinically on a small scale."
- Quotes from Paul Farmer in Tracy Kidder's book, "Mountains Beyond Mountains."
What an illuminating experience you are having! It must feel so rewarding to help when you can and when you can't, to have a better appreciation for all the resources we take for granted in the states. I haven't seen a CXR like that during my entire month of rads! Good work Dr. Garg!
ReplyDeleteIshu